A CT scan tells me that I have generalised cortical atrophy with this being predominantly frontal - and, frustratingly, that’s all I can say about my condition.
It’s taken me a long time to get this far. I’ve realised for months that something neurological wasn’t right: no other explanation fitted my symptoms of apathy, anhedonia, loss of empathy etc..But the Consultant Psychiatrist I had at the time refused to countenance any such possibility . He told me that I was too young, and that my high cognitive rating meant I couldn’t possibly have dementia.
I have since moved, and a new MH team have been better at listening - hence the CT scan. But now this lot are reluctant to diagnose without further tests, so I am on the list for a SPECT scan.
I’m finding the waiting deeply frustrating. Arrangements need to be made for my future care, and I just plain want to know what’s going on with my poorly brain. But at least now I feel that I am being taken seriously.
top of page
To see this working, head to your live site.
I have atrophy, but do I have dementia?
I have atrophy, but do I have dementia?
2 comments
Like
2 Comments
bottom of page
Thanks Pete - not always easy, but getting a definitive diagnosis helped
I've watched you blossoming on Twitter over the months since you posted this. You have become master of your condition and seem to have accommodated it very well indeed. You should be VERY proud of yourself.